Cannot believe I made it to this day. Thanks to Trikafta I am experiencing life without constant infection and debilitating GI symptoms. I have so much energy – I never truly realized how bad it was til it was gone.
I realize the good times don’t last so I’m taking my time and attempting to live fully in this moment hanging on to this feeling I have today so when it does change I can remember how far I made it and how lucky I’ve been for this incredible chance to live in a day almost free of my 35+ year terminal illness. With the present awareness that my lungs can still fail at any moment, I’m at peace to have had this ability to feel so amazing in my own body that ceased to function for so long, something I’d never imagined having the chance to feel, to be truly at peace with my breath instead of fearful.
Not without science and medicine but just feeling lucky today for a body that doesn’t feel like it’s decomposing while I’m trying to live in it. The absolute crazy fucking miracle, is that my lung function has been increasing – I can only attribute it to my insane running ability which is allowing me to at least sleep with all this new energy I’m still learning to harness. Cannot believe this has happened to me. Please excuse me while I go cry for my younger self.